Here are links to some of the research that helped us develop the opera.
Locked-in syndrome: a review of 139 cases
Pressure Volume Curves of the Respiratory System
Scientists seek to help Locked In man speak
Life can be worth living in locked-in syndrome
We also read the following books which provided a great (non-scientific background)
The Diving Bell and the Butterfly by Jean Dominique-Bauby - the book that inspired FLICKER in the first place - beautifully written and powerful memoir about the experiences of having Locked In Syndrome written entirely by Jean blinking his left eyelid.
Me Before You by Jojo Moyes - a surprisingly un-sentimental novel about the relationship between a young man who becomes paraplegic after a motorbike accident and his carer.